News

Claudia Crocione recipient of the 2020 Black Pearl Award

The Black Pearl Awards shine a light on the remarkable efforts to build a brighter future for everyone living with a rare disease. We are very proud that HHT Europe Managing Director, Claudia Crocione, received […]

I HAVE THE SAME RARE DISEASE THAT KILLED MY BROTHER

Katie Woods tells her story of living with HHT I was like all of the other kids at school, just that my doctor was in Cork and not in Dublin, […]

HHT EUROPE ANNUAL MEETING – MADRID 2019

The annual meeting of HHT Europe 2019 was held in Madrid on 18 and 19 October. The delegates of our 12 member organisations met together with other HHT experts from […]